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RECRUITING

NCT07903402

AGU Registry and NHS

Sponsor: Rare Trait Hope

View on ClinicalTrials.gov

Summary

The Aspartylglucosaminuria (AGU) Registry and Natural History Study (AGU Registry) aims to gain a more comprehensive understanding of Aspartylglucosaminuria (AGU) disease through an in-depth understanding of the disease progression in global patient population and burden of the disease on the family and caretakers.

Official title: Aspartylglucosaminuria (AGU) Registry and Natural History Study (AGU Registry).

Key Details

Gender

All

Age Range

Any - Any

Study Type

OBSERVATIONAL

Enrollment

300

Start Date

2024-11-29

Completion Date

2036-11-29

Last Updated

2026-10-29

Healthy Volunteers

Conditions

Aspartylglucosaminuria Aspartylglucosamidase (AGA) Deficiency

Locations (1)

Agu.Iamrare.Org

New Orleans, Louisiana, United States